Geriatrics

The American Geriatrics Society
American Health Care Association
Health and Age
The National Center for Assisted Living
Andrus Gerontology Library
The Gerontological Society of America
International Association of Gerontology
Assisted Living Federation of America
Geriatric Times

Rehabilitation

The National Institute on Disability and Rehabilitation Research
American Academy of Physical Medicine and Rehabilitation
Rehabilitation Engineering and Assistive Technology Society of North America
American Association of¾Cardiovascular and Pulmonary¾Rehabilitation
Federation of State Boards of Physical Therapy
About Physical Therapy
New York Physical Therapy Association
Section on Geriatrics, American Physical Therapy Association

Ventilator Care

The ALS Association (ALSA)
27001 Agoura Rd Ste 150, Calabasas Hills, CA  91301
800-782-4747, 818-880-9007, 818-880-9006 fax
alsinfo@alsa-national.org, www.alsa.org
 
American Association for Respiratory Care (AARC)
11030 Ables Ln, Dallas, TX  75229
972-243-2272, 972-484-2720 fax
info@aarc.org, www.aarc.org
 
American College of Chest Physicians (ACCP)
3300 Dundee Rd, Northbrook, IL  60062
847-498-1400, 847-498-5460 fax
accp@chestnet.org, www.chestnet.org
 
American Sleep Apnea Association
1424 K St NW Ste 302, Washington, DC  20005
202-293-3650, 202-293-3656 fax
www.sleepapnea.org
 
American Syringomyelia Alliance Project
PO Box 1586, Longview, TX  75606
800-272-7282, 903-236-7079, 903-757-7456 fax
www.syringo.org
 
American Thoracic Society (ATS)
1740 Broadway, New York, NY  10019
212-315-8700, 212-315-6498 fax
info@lungusa.org, www.thoracic.org
 
CCHS Family Network
71 Maple St, Oneonta, NY  13820
607-431-4351 fax
VanderlaanM@hartwick.edu, www.cchsnetwork.org
 
Charcot-Marie-Tooth Association (CMTA)
2700 Chestnut St, Chester, PA  19013
800-606-2682, 610-499-9264, 610-499-9267 fax
www.charcot-marie-tooth.org
 
Christopher Reeve Paralysis Foundation (CRPF)
500 Morris Ave, Springfield, NJ  07081
800-225-0292, 973-912-9433 fax
www.christopherreeve.org
 
The Christopher & Dana Reeve Paralysis Resource Center
636 Morris Turnpike Ste 3A, Short Hills, NJ  07078
800-539-7309, 973-467-8270, 973-467-9845 fax
www.christopherreeve.org
 
Communication Independence for Neurologically Impaired, Inc. (CINI, Inc.)
c/o Kornreich Technology Ctr, 201 I.U. Willets Rd, Albertson, NY  10507
516-465-1629, 516-465-3744 fax
cini@cini.org, www.cini.org
 
Cystic Fibrosis Foundation
6931 Arlington Rd, Bethesda, MD  20814
800-344-4823, 301-951-4422, 301-951-6378 fax
info@cff.org, www.cff.org
 
Disability Options
540 Main St Ste B432, New York, NY  10044
212-832-1415, 212-223-9416 fax
ieholland@juno.com
 
Families of SMA
PO Box 196, Libertyville, IL  60048-0196
800-886-1762, 847-367-7620, 847-367-7623 fax
sma@fsma.org, www.fsma.org
 
Families of SMA of Louisiana
3350 Ridgelake Dr Ste 150, Metairie, LA  70002
504-828-0010, 504-828-0899 fax
 
Family Support Network
1850 E 17th St Ste 103, Santa Ana, CA  92705
714-543-7600, 714-543-2766 fax
fsnca@sbcglobal.net
 
Family Voices
3411 Candelaria NE Ste M, Albuquerque, NM  87107
888-835-5669, 505-872-4774, 505-872-4780 fax
kidshealth@familyvoices.org, www.familyvoices.org
 
FSH (Facioscapulohumeral) Society, Inc.
3 Westwood Rd, Lexington, MA  02420
781-860-0501, 781-860-0599 fax
www.fshsociety.org
 
Guillain-BarrÏ Syndrome Foundation
PO Box 262, Wynnewood, PA  19096
610-667-0131, 610-667-7036 fax
www.webmast.com/gbs
 
Independent Living Research Utilization (ILRU)
Research & Training Ctr, 2323 S Shepherd Dr Ste 1000, Houston, TX  77019
713-520-0232, 713-520-5136 TDD, 713-520-5785 fax
www.ilru.org
 
International Polio Network (IPN)
4207 Lindell Blvd # 110, Saint Louis, MO  63108-2915
314-534-0475, 314-534-5070 fax
www.post-polio.org/ipn
 
International Ventilator Users Network (IVUN)
4207 Lindell Blvd # 110, Saint Louis, MO  63108-2915
314-534-0475, 314-534-5070 fax
www.post-polio.org/ivun
 
Kennedyês Disease Association, Inc.
PO Box 2050, Simi Valley, CA  93062
805-577-9591, lswaite@pacbell.net, www.kennedysdisease.org
 
Les Turner ALS Foundation Ltd.
8142 Lawndale, Skokie, IL  60076
888-ALS-1107, 847-679-3311, 847-679-9109 fax
www.lesturnerals.org
 
Muscular Dystrophy Association (MDA)
3300 E Sunrise Dr, Tucson, AZ  85718
800-572-1717, 520-529-5300 fax
mda@mdausa.org, www.mdausa.org, www.mdaenespanol.org
 
Myasthenia Gravis Foundation
5841 Cedar Lake Rd # 204, Minneapolis, MN  55416
800-541-5454, 952-545-9438, 952-646-2028 fax
www.myasthenia.org
 
National Association for Medical Direction of Respiratory Care (NAMDRC)
5454 Wisconsin Ave Ste 1270, Chevy Chase, MD  20815
310-718-2975, 301-718-2976 fax
namdrc@erols.com, www.namdrc.org
 
National Association of Pediatric Home & Community Care
UMass Memorial Healthcare, 55 Lake Ave N Rm S5-860, Worcester, MA  01655
508-856-1908, 508-856-2609 fax
paged02@ummhc.org
 
National Coalition to Amend the Homebound Restriction (NCAHB)
13831 Hutchings Ct, Watsonville, CA  95076
831-728-7764, 831-728-5123 fax
NCAHB1@aol.com
www.amendhomeboundpolicy.homestead.com
 
National Family Caregivers Association
10400 Connecticut Ave Ste 500, Kensington, MD  20895
800-896-3650, 301-942-2302 fax
www.nfcacares.org
 
National Information Center for Children and Youth with Disabilities (NICHCY)
PO Box 1492, Washington, DC  20013
800-695-0285, 202-884-8200, 202-884-8441 fax
nichcy@aed.org, www.nichcy.org
 
National Organization for Rare Disorders, Inc. (NORD)
55 Kenosia Ave, PO Box 1968, Danbury, CT  06813-1968
203-744-0100, 203-797-9590, 800-999-6673 (voicemail only)
203-798-2291 fax
www.rarediseases.org
 
The National Scoliosis Foundation
5 Cabot Pl, Stoughton, MA  02072
800-673-6922, 781-341-6333, 781-341-8333 fax
www.scoliosis.org
 
National Spinal Cord Injury Association (NSCIA)
6701 Democracy Blvd Ste 300-9, Bethesda, MD  20817
800-962-9629, 301-588-6959, 301-588-9414 fax
resource@spinalcord.org, www.spinalcord.org
 
Northwest Assistive Breathing Center
University of Washington Medical Center
1959 NE Pacific St Box 356522, Seattle, WA  98195
206-598-5864, benditt@u.washington.edu
 
Paralyzed Veterans of America (PVA)
801 18th St NW, Washington, DC  20006
800-872-8200, 202-872-1300, 800-795-4327 TDD
AnnS@pnnews.com, www.pva.org
 
The Parent Project for Muscular Dystrophy Research, Inc.
1012 N University Blvd, Middletown, OH  45042
800-714-KIDS, 513-424-0696, 513-425-9907 fax
www.parentprojectmd.org
 
Pierre Robin Network
PO Box 3274, Quincy, IL  62305
217-224-7480, 217-224-0292 fax
www.pierrerobin.org
 
Polio Survivors Association
12720 LaReina Ave, Downey, CA  90242
562-862-4508, 562-862-5018 fax
richard@polioassociation.org, www.polioassociation.org
 
Respiratory Nursing Society (RNS)
11 Cornell Rd, Latham, NY  12110
518-782-9400 ext 286, 518-782-9530 fax
rns@nysna.org
 
Respiratory Resources, Inc.
850 Amsterdam Ave Ste 9A, New York, NY  10025
212-666-2210, 212-666-0642 fax
breethezy@aol.com, www.breethezy.com
 
Scoliosis Association, Inc.
PO Box 811705, Boca Raton, FL  33481-1705
800-800-0669, 561-994-4435, 561-994-2455 fax
www.scoliosis-assoc.org
 
Sick Kids (Need) Involved People
SKIP of New York, Inc.
213 W 35th St 11th Flr, New York, NY 10001

212-268-5999, 212-268-7667 fax

Other Links

Dementia